We just heard about the disorder from Sharon's post today .
I missed your post due to me being sick with a cold all week and as a consequence I didn't see your post until today.

Good that you have finally found out what is wrong with you(cool name for a disorder as well) , I know what its like not knowing and a friend that has a similiar condition to you but she still doesn't know what is wrong with her .

*hugs from both of us*