A lot of what you write reminds me of Sonia, who has similar problems with her MS - particularly the problem of not remembering to accept help when offered or to deliberately do as little as possible to conserve energy.

I had a conversation with someone once about how strange it was that the people most often struck by these sorts of ailments always seem to be the most vigorous and energetic ones - then we realised that the vigorous and energetic ones are probably the only people strong enough to handle it.

I too can not resist sitting down in the shower, particularly when washing my hair.