dalekboy: (woohoo naked dancing)
dalekboy ([personal profile] dalekboy) wrote2007-03-01 07:00 pm
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How good is he?

Oh, he's good. We walked into his office and there on his wall, next to all his medical degrees, is this poster in a frame...
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So, he has a sense of humour and a sense of history. I like the man already. He comes in and we talk about the poster and he starts telling us all the ingredients in the original mixture! So, he's a nicely curious guy, too. Excellent!

It would appear that I'm suffering from a Labyrinthine Disorder caused by a Basilar Migraine. Remember that migraine I had back on the first of April last year? The one that lasted two weeks? Yep, that was the cause of all this. Effectively it gave me a mini-stroke near my brain-stem. As we went through all the various issues I'd been having, balance, no concentration, exhaustion, pains in my legs, slow deterioration, issues with words and spelling, weakness, every symptom we could come up with just confirmed his hypothesis more. It's still not 100% certain, and it's something that is very hard to confirm without tests that can leave you permanently worse off than when you went in, but it seems a pretty solid bet.

Apparently I was lucky. People can go to sleep with these migraines and wake up paralysed down one side of their body! It's nothing to do with family history, diet or anything else, only migraines. And since I didn't get migraines until after I'd caught Leptospirosis from the cattle, there's no issues of genetically passing on the dangers of stroke to the dozen or so children I hope to father.

However, I do have to be super-diligent about migraines in future. If I get one it has to be acted on immediately. If I've had medication and not gotten over it within 24 hours, I have to go to hospital. If I don't, I'm risking an actual full-blown stroke. But given I get migraines maybe once every year or so, I don't have much to worry about.

And my jogging/walking regime was the best thing I could have done. The fact that I want to learn to swim as well works in with that. Exercise and changing of body position are ideal, so there's lots of sex on the cards, too. *wicked grin* These things will help retrain my body and my balance. With regards to all the issues it's not implausible that I could, over time, make a 100% recovery. I may not. There is certainly damage, how permanent it is can only be found out over time.

But it ain't gunna kill me unless I risk ignoring a migraine, it ain't gunna get worse unless I let it by not exercising, and I have a chance at getting back to my old self, though it may take years.

So please spread the word to all interested parties. My world totally rocks!

How's yours?

[identity profile] fuschia17.livejournal.com 2007-03-01 09:38 pm (UTC)(link)
Brilliant :-)

Love the medicine myself... :-)

[identity profile] lobelet.livejournal.com 2007-03-02 12:31 am (UTC)(link)
Great news! I'll pass it on to Robin when she gets home from work.

Much love from both of us.

[identity profile] dalekboy.livejournal.com 2007-03-02 01:00 am (UTC)(link)
Yay! Thank you!

[identity profile] angriest.livejournal.com 2007-03-02 12:38 am (UTC)(link)
I am relieved, and kind of bizarrely thrown by what's actually happened to you.

[identity profile] dalekboy.livejournal.com 2007-03-02 01:05 am (UTC)(link)
Yeah, not a proper stroke, but the after-effect of a migraine that has produced the same basic results in minature.

Next Swancon, Grant Stone and I will do a violent closing ceremony and halfway through turn to you and say "Jooooiinn Uuuussssss..."

Oh, Sharon now calls me 'Stroke Boy.' I love that woman!

[identity profile] angriest.livejournal.com 2007-03-02 01:08 am (UTC)(link)
OMG, it was the 1998 closing ceremony that did it!!!

Fuck I'm next!!!!!

[identity profile] dalekboy.livejournal.com 2007-03-02 01:15 am (UTC)(link)
1998?!

It's been nine freakin' years since I nearly offed Grant Stone?!

*cracks knuckles*

I'm overdue for another try, I reckon!

[identity profile] angriest.livejournal.com 2007-03-02 01:19 am (UTC)(link)
Nah, Stone's old news - he's not a threat to us any more.

It's that John Robertson I'm worried about. You and I should talk...

[identity profile] dalekboy.livejournal.com 2007-03-02 01:29 am (UTC)(link)
Oh really? Stone's not a threat? You think?

And which of the three of us actually has a TV show?!

[identity profile] rendragon.livejournal.com 2007-03-02 02:35 am (UTC)(link)
*does a hapy dance*

Excellent News!

Only way from here is up up up!



[identity profile] splodgenoodles.livejournal.com 2007-03-02 04:10 am (UTC)(link)
That's pretty darn good. It's worrying that no one else realised - by chance you found a guy that did.

I second the suggestion someone else made of carrying a letter with you. Or a card in your wallet with a few pertinent details.

[identity profile] dalekboy.livejournal.com 2007-03-02 05:50 am (UTC)(link)
He was vaguely apologetic for and at the same time obviously annoyed at the neurologist in Melbourne for not really investigating the fact that this started with the migraine.

He commented that it's a subtle thing that won't show up in CAT scans, MRI or even MRA tests unless you get it done during the actual migraine. Of course, then he was annoyed that the guy never sent me for a MRA, and just wanted to wait and see what developed as the months rolled by.

If I'd had another major migraine in that time, I could have been in real trouble. As it is I think I had one, it was a normal one for me which means it lasted a day or so and then vanished.

Will be working on the card thing, don't you worry :)
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[identity profile] king-espresso.livejournal.com 2007-03-02 05:05 am (UTC)(link)
All of the above good wishes :). The stress-relief for both you guys must be enormous. Keep on truckin'

[identity profile] dalekboy.livejournal.com 2007-03-02 05:52 am (UTC)(link)
We're both totally exhausted today. I don't think either of us were super-stressed about it, but just knowing is such a huge relief we've both gone thud.

[identity profile] tillianion.livejournal.com 2007-03-02 09:40 am (UTC)(link)
OMG!!!! This is the most fantastic, amazing news ever! I know, having a label shouldn't mean anything, but it does, doesn't it? If only to know you aren't mad.

A brief glimpse of the light at the end of the tunnel. That's fantastic. Go for it!
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[identity profile] shrydar.livejournal.com 2007-03-02 09:45 am (UTC)(link)
Fabulous news - so glad you now have a lable, and steps to take and things to watch out for.

I had a mild case of Labyrinthitus a couple of years ago, so I did some poking around as to some of the nasty effects ear problems can extend to - balance ties in with sooo many systems. Yay for a degree of relearning being likely in your case :)

[identity profile] davidcook.livejournal.com 2007-03-02 11:36 am (UTC)(link)
Good to hear ! I'm sure you'll be scaring the sheep for many years yet ...

[identity profile] livelurker.livejournal.com 2007-03-02 11:44 am (UTC)(link)
Did he charge you 6 & 1?

Glad to hear you've got a diagnosis.
pedanther: (happy face)

[personal profile] pedanther 2007-03-03 02:25 am (UTC)(link)
Yay! for the diagnosis.

And another Yay! for there being so many people that are happy for you.

[identity profile] meljane.livejournal.com 2007-03-04 02:00 am (UTC)(link)
We just heard about the disorder from Sharon's post today .
I missed your post due to me being sick with a cold all week and as a consequence I didn't see your post until today.

Good that you have finally found out what is wrong with you(cool name for a disorder as well) , I know what its like not knowing and a friend that has a similiar condition to you but she still doesn't know what is wrong with her .

*hugs from both of us*

[identity profile] callistra.livejournal.com 2007-03-04 07:28 am (UTC)(link)
Yay! You finally know! The relief in that alone must feel fantastic.
:-)

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