I think one of the most frustrating things about your situation would be the unpredicatability of it. At least with me, the angst I was feeling last night about my situation, my pain levels, limitations etc were as a result of having to bend and pick up the dog for the last few days to stop her hurting herself jumping up and down with stairs and chairs. There was a *reason* for it. And as a result I've implemented some things to minimise it (eg a ramp at the back door she can use instead of the stairs, sitting down before picking her up so I'm not bending as far etc).
On the other hand, if I'm having a bad patch, I can't suddenly find that I'm okay for a short period!
I sometimes get a jolt of fear about how my life would be if other discs decided to go, if decisions I make in the future make me worse etc. You seem to have a better handle on coping with future possibilities better than I have, despite the unpredictability and seriousness of your situation.
Anyway, kudos for you in the way that you are handling it. Not just managing it day to day, but how you are able to reflect on it, and increasingly share it with others.
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Date: 2007-01-01 11:39 pm (UTC)On the other hand, if I'm having a bad patch, I can't suddenly find that I'm okay for a short period!
I sometimes get a jolt of fear about how my life would be if other discs decided to go, if decisions I make in the future make me worse etc. You seem to have a better handle on coping with future possibilities better than I have, despite the unpredictability and seriousness of your situation.
Anyway, kudos for you in the way that you are handling it. Not just managing it day to day, but how you are able to reflect on it, and increasingly share it with others.